Thyroid Eye Disease Specialists

Thyroid Eye Disease (TED) is complicated and rare; not all doctors are used to treating it.

That is why you should see a doctor who specializes in treating Thyroid Eye Disease. Most endocrinologists do not treat TED. Make sure you are seeing an eye specialist, such as an ophthalmologist or oculoplastic surgeon, who has experience with it.

Some ophthalmologists have special training and see more TED patients. Here are different types of specialized eye doctors:

Oculoplastic surgeons repair the physical damage to the eyes and face caused by TED
Neuro-ophthalmologists treat vision problems related to the nerves in and around the eyes
Strabismus surgeons repair eyes that are misaligned or point in two different directions

Many of these TED Specialists are familiar with TEPEZZA.

Although oculoplastic and strabismus surgeons perform surgery, they also see patients with TED who are in the “acute” (or “active”) phase before surgery may be needed.

My oculoplastic surgeon understood TED in a way that my previous doctors hadn’t.”

– Jeanne T., real TEPEZZA patient

Photo of TEPEZZA patient, Jeanne

Ophthalmologists will:

Perform an eye exam
Check at each visit to see how your Thyroid Eye Disease is changing over time
Determine if you are in the acute (or "active") phase of TED or the "chronic" (or "inactive") phase
Create a treatment plan
If you have a thyroid condition, they will work with your endocrinologist to make sure your thyroid treatment does not affect any medicines you may be taking for your TED or vice versa

Endocrinologists will:

Manage any thyroid condition you may have, like Graves’ disease (hyperthyroidism) or Hashimoto’s disease (hypothyroidism)
Work with your TED Specialist on a treatment plan for TED

Depending on your insurance plan, you may need a referral from your primary care physician before you can see a specialist.

Find a TED Specialist

Not all doctors are used to treating TED. Find a TED Specialist in your area to make sure you are seeing a doctor who has experience treating it.

Talking to your doctor about Thyroid Eye Disease

TED is complicated and there is a lot to remember. This guide can help you have better conversations with your TED Specialist.

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USE and IMPORTANT SAFETY INFORMATION

What is the most important information I should know about TEPEZZA?

Infusion reactions can happen during or within 24 hours after your infusion of TEPEZZA. If you have a reaction while receiving TEPEZZA, your doctor or nurse will slow or stop your infusion and treat your reaction. If you have a severe infusion reaction, your doctor may stop your treatment completely.

Tell your doctor or nurse right away if you have any of these symptoms during or after your treatment with TEPEZZA:

High blood pressure
Fast heartbeat
Redness of the face/Feeling hot

Difficulty breathing
Headache
Muscle pain

If you have inflammatory bowel disease (IBD), such as Crohn's disease or ulcerative colitis, TEPEZZA may make your IBD symptoms worse. Symptoms of worsening IBD may include: an increased number of loose stools with stomach pain or cramps, and blood in your stools. After each TEPEZZA infusion, tell your doctor right away if you have worsening IBD symptoms.

TEPEZZA may cause an increase in your blood sugar. Before starting treatment with TEPEZZA, tell your doctor if you are currently being treated for diabetes, know your blood sugar is high, or have been diagnosed with diabetes. It is important for you to take your treatments and follow an appropriate diet for glucose control as prescribed by your doctor.

Before receiving TEPEZZA, tell your doctor if you:

Have inflammatory bowel disease (Crohn's disease or ulcerative colitis).
Are currently being treated for diabetes, have been diagnosed with diabetes, or know your blood sugar is high.
Are pregnant or plan to become pregnant. TEPEZZA may harm your unborn baby. Tell your doctor if you become pregnant or suspect you are pregnant during treatment with TEPEZZA.
- Women who are able to become pregnant should use an effective form of birth control (contraception) prior to starting treatment, during treatment and for at least 6 months after the final dose of TEPEZZA.
Are breastfeeding or plan to breastfeed. It is not known if TEPEZZA passes into your breast milk. Talk to your doctor about the best ways to feed your baby during treatment with TEPEZZA.
Tell your doctor about all the medicines you take, including prescription and over the counter medicines, vitamins, dietary and herbal supplements. Know the medicines you take. Keep a list of them to show your doctor and pharmacist when you get a new medicine.

What are the possible side effects of TEPEZZA?

The most common side effects of TEPEZZA include muscle cramps or spasms, nausea, hair loss, diarrhea, feeling tired, high blood sugar, hearing problems, taste changes, headache, and dry skin.

This is not a complete list of all possible side effects. Tell your doctor or treatment team if you have any side effect that bothers you or that does not go away.

Please visit TEPEZZA.com for more information.

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/safety/medwatch, or call the FDA at 1-800-FDA-1088.

USE

TEPEZZA is a prescription medicine used to treat Thyroid Eye Disease.