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Thyroid Eye Disease (TED) can cause different symptoms. You may notice that some symptoms develop slowly, and others appear quickly.
In time, TED can leave you with ongoing symptoms like eye bulging, double vision, and pressure behind the eyes. So, it is important to recognize symptoms early and start a treatment plan with your doctor. The sooner you spot changes to your eyes, the sooner your doctor can help. Find a TED Specialist today!
TED affects everyone differently. You may experience all or some of the symptoms listed below. After reading about the symptoms of TED, you can use the interactive tool Talking to Your Doctor about TED to help you prepare for your next appointment with your doctor.
If you notice any vision loss, talk to your doctor right away.
TEPEZZA is the only medicine to treat Thyroid Eye Disease (TED) at a source, not just the symptoms. Watch a video to see TEPEZZA in action.
Although there are many symptoms of TED to look for, the most noticeable is bulging of the eye, which your doctor may call proptosis (prop-toe-sis) or exophthalmos (ek-sof-thal-muhs).
With TED, over time muscle and fat tissue behind the eye become swollen. This swelling can push against the back of the eye, causing it to bulge forward.
During an eye exam, your TED Specialist will use a special ruler called an exophthalmometer (ek-sof-thuhl-mom-i-ter) to measure how far the eyes have bulged.
Generally, your TED Specialist will measure eye bulging before, during, and after treatment. This helps them keep track of how much your eyes have improved.
Not all doctors are familiar with diagnosing and treating TED. Look for a TED Specialist in your area who has experience treating TED.
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Infusion reactions can happen during or within 24 hours after your infusion of TEPEZZA. If you have a reaction while receiving TEPEZZA, your doctor or nurse will slow or stop your infusion and treat your reaction. If you have a severe infusion reaction, your doctor may stop your treatment completely.
TEPEZZA may worsen inflammatory bowel disease (IBD), such as Crohn’s disease or ulcerative colitis, even if you don’t have a diagnosis of IBD before starting TEPEZZA treatment. Tell your doctor right away if you have worsening IBD symptoms, which may include diarrhea with stomach pain or cramps, blood in your stools, sudden urgency to have a bowel movement, or feeling like you need to have a bowel movement even when there’s little or no stool to pass.
TEPEZZA may cause an increase in your blood sugar. Before starting treatment with TEPEZZA, tell your doctor if you are currently being treated for diabetes, know your blood sugar is high, or have been diagnosed with diabetes. It is important for you to take your treatments and follow an appropriate diet for glucose control as prescribed by your doctor.
TEPEZZA may cause severe hearing problems including hearing loss, which in some cases may be permanent. Tell your doctor if you have any signs or symptoms of hearing problems or changes in hearing.
The most common side effects of TEPEZZA include muscle cramps or spasms, nausea, hair loss, diarrhea, feeling tired, high blood sugar, hearing problems, taste changes, headache, dry skin, ear discomfort, weight loss, nail problems, and changes in menstruation.
This is not a complete list of all possible side effects. Tell your doctor or treatment team about any side effect you may have.
TEPEZZA is a prescription medicine used to treat Thyroid Eye Disease (TED), no matter if you’ve had TED for months or years.
Infusion reactions can happen during or within 24 hours after your infusion of TEPEZZA. If you have a reaction while receiving TEPEZZA, your doctor or nurse will slow or stop your infusion and treat your reaction. If you have a severe infusion reaction, your doctor may stop your treatment completely.
