TEPEZZA Patient Stories

Hear from real people who have taken TEPEZZA

These are real people with Thyroid Eye Disease (TED) treated with TEPEZZA in a clinical study. Individual results may vary.

Photo of TEPEZZA patient Judy B Photo of TEPEZZA patient Judy B

Judy B.

Before TEPEZZA

“I started experiencing visual problems which affected my daily life. I slowly stopped reading because I couldn’t track the words on the page. Eventually, I stopped driving, relying on others for transportation.”

“My eyes were protruding more and more each day. I felt freakish. In public, I felt like people were staring at me. I avoided having my picture taken as much as possible. I also avoided people I didn’t know, and I would look away or down at the floor.”

After TEPEZZA

Photo of TEPEZZA patient Judy B

“Towards the end of the infusions, my eyes started to look more normal. Visually, things started to improve. My ability to focus on reading materials improved.”

“Now that I’ve finished treatment, I can read without eye strain. Walking over uneven ground is no longer a challenge. Running with the grandkids and hiking are back on the list. I can drive again. I feel comfortable having my picture taken and able to focus through the camera lens to take a picture.”

Select Important Safety Information

If you have inflammatory bowel disease (IBD), such as Crohn’s disease or ulcerative colitis, TEPEZZA may make your IBD symptoms worse. Please see Full Important Safety Information below.


Photo of TEPEZZA patient Karen W Photo of TEPEZZA patient Karen W

Karen W.

Before TEPEZZA

“I began to experience ‘double vision.’ While driving, I became scared when I began to see double lights in oncoming traffic, and I couldn’t focus properly on the road.”

“Within months, my eye was beginning to protrude from its socket. I felt that everyone was looking at my eye. I became extremely self-conscious of my appearance. I began wearing sunglasses when out in public to hide the eye bulging, and I would often refuse to have my picture taken. It was a large blow to my self-esteem.”

After TEPEZZA

Photo of TEPEZZA patient Karen W

“I began to notice that the swelling was going down, and my eye bulging was beginning to recede. My double vision seemed to disappear, and my eye was beginning to appear better. I resumed many of the activities that I had previously enjoyed such as pleasure reading, attending movies, and working on various crafts.”

Select Important Safety Information

TEPEZZA may cause an increase in your blood sugar. Before starting treatment with TEPEZZA, tell your doctor if you are currently being treated for diabetes, know your blood sugar is high, or have been diagnosed with diabetes. Please see Full Important Safety Information below.


Photo of TEPEZZA patient Wendy L Photo of TEPEZZA patient Wendy L

Wendy L.

Before TEPEZZA

“I started having problems completing everyday activities. At work, I sat in a dark room and often wore sunglasses while looking at the computer screen. Driving also became difficult. I drove with one eye closed due to severe double vision. I quit driving long distances and anywhere I was not familiar.”

“I was told that I looked ‘bug-eyed’ and ‘tired.’ I became so self-conscious that I did not want to meet new people.”

After TEPEZZA

Photo of TEPEZZA patient Wendy L

“I had a 2 mm reduction in proptosis (eye bulging) in one eye and a 3 mm reduction in the other. What does a 2 or 3 mm reduction in proptosis mean? For me, it made a real difference in my life.”

“Now, I feel good about my appearance and I have resumed almost all of my previous activities. I am able to watch my kids play sports, drive at night, and work.”

Select Important Safety Information

Before receiving TEPEZZA, tell your doctor if you are pregnant or plan to become pregnant. Women who are able to become pregnant should use an effective form of birth control (contraception) prior to starting treatment, during treatment and for at least 6 months after the final dose of TEPEZZA. Please see Full Important Safety Information below.

USE and IMPORTANT SAFETY INFORMATION

What is the most important information I should know about TEPEZZA?

Infusion reactions can happen during or within 24 hours after your infusion of TEPEZZA. If you have a reaction while receiving TEPEZZA, your doctor or nurse will slow or stop your infusion and treat your reaction. If you have a severe infusion reaction, your doctor may stop your treatment completely.

Tell your doctor or nurse right away if you have any of these symptoms during or after your treatment with TEPEZZA:
  • High blood pressure
  • Fast heartbeat
  • Redness of the face/Feeling hot
  • Difficulty breathing
  • Headache
  • Muscle pain

If you have inflammatory bowel disease (IBD), such as Crohn’s disease or ulcerative colitis, TEPEZZA may make your IBD symptoms worse. Symptoms of worsening IBD may include: an increased number of loose stools with stomach pain or cramps, and blood in your stools. After each TEPEZZA infusion, tell your doctor right away if you have worsening IBD symptoms.

TEPEZZA may cause an increase in your blood sugar. Before starting treatment with TEPEZZA, tell your doctor if you are currently being treated for diabetes, know your blood sugar is high, or have been diagnosed with diabetes. It is important for you to take your treatments and follow an appropriate diet for glucose control as prescribed by your doctor.

Before receiving TEPEZZA, tell your doctor if you:
  • Have inflammatory bowel disease (Crohn’s disease or ulcerative colitis).
  • Are currently being treated for diabetes, have been diagnosed with diabetes, or know your blood sugar is high.
  • Are pregnant or plan to become pregnant. TEPEZZA may harm your unborn baby. Tell your doctor if you become pregnant or suspect you are pregnant during treatment with TEPEZZA.
    • Women who are able to become pregnant should use an effective form of birth control (contraception) prior to starting treatment, during treatment and for at least 6 months after the final dose of TEPEZZA.
  • Are breastfeeding or plan to breastfeed. It is not known if TEPEZZA passes into your breast milk. Talk to your doctor about the best ways to feed your baby during treatment with TEPEZZA.
  • Tell your doctor about all the medicines you take, including prescription and over the counter medicines, vitamins, dietary and herbal supplements. Know the medicines you take. Keep a list of them to show your doctor and pharmacist when you get a new medicine.
What are the possible side effects of TEPEZZA?

The most common side effects of TEPEZZA include muscle cramps or spasms, nausea, hair loss, diarrhea, feeling tired, high blood sugar, hearing problems, taste changes, headache, and dry skin.

This is not a complete list of all possible side effects. Tell your doctor or treatment team if you have any side effect that bothers you or that does not go away.

Please visit TEPEZZA.com for more information.
You are encouraged to report negative side effects of prescription drugs to the FDA.
Visit www.fda.gov/safety/medwatch, or call the FDA at 1-800-FDA-1088.

USE

TEPEZZA is a prescription medicine used to treat Thyroid Eye Disease.

USE and IMPORTANT SAFETY INFORMATION

What is the most important information I should know about TEPEZZA?

Infusion reactions can happen during or within 24 hours after your infusion of TEPEZZA. If you have a reaction while receiving TEPEZZA, your doctor or nurse will slow or stop your infusion and treat your reaction. If you have a severe infusion reaction, your doctor may stop your treatment completely.

Tell your doctor or nurse right away if you have any of these symptoms during or after your treatment with TEPEZZA:
  • High blood pressure
  • Fast heartbeat
  • Redness of the face/Feeling hot
  • Difficulty breathing
  • Headache
  • Muscle pain

If you have inflammatory bowel disease (IBD), such as Crohn’s disease or ulcerative colitis, TEPEZZA may make your IBD symptoms worse. Symptoms of worsening IBD may include: an increased number of loose stools with stomach pain or cramps, and blood in your stools. After each TEPEZZA infusion, tell your doctor right away if you have worsening IBD symptoms.

TEPEZZA may cause an increase in your blood sugar. Before starting treatment with TEPEZZA, tell your doctor if you are currently being treated for diabetes, know your blood sugar is high, or have been diagnosed with diabetes. It is important for you to take your treatments and follow an appropriate diet for glucose control as prescribed by your doctor.

Before receiving TEPEZZA, tell your doctor if you:
  • Have inflammatory bowel disease (Crohn’s disease or ulcerative colitis).
  • Are currently being treated for diabetes, have been diagnosed with diabetes, or know your blood sugar is high.
  • Are pregnant or plan to become pregnant. TEPEZZA may harm your unborn baby. Tell your doctor if you become pregnant or suspect you are pregnant during treatment with TEPEZZA.
    • Women who are able to become pregnant should use an effective form of birth control (contraception) prior to starting treatment, during treatment and for at least 6 months after the final dose of TEPEZZA.
  • Are breastfeeding or plan to breastfeed. It is not known if TEPEZZA passes into your breast milk. Talk to your doctor about the best ways to feed your baby during treatment with TEPEZZA.
  • Tell your doctor about all the medicines you take, including prescription and over the counter medicines, vitamins, dietary and herbal supplements. Know the medicines you take. Keep a list of them to show your doctor and pharmacist when you get a new medicine.
What are the possible side effects of TEPEZZA?

The most common side effects of TEPEZZA include muscle cramps or spasms, nausea, hair loss, diarrhea, feeling tired, high blood sugar, hearing problems, taste changes, headache, and dry skin.

This is not a complete list of all possible side effects. Tell your doctor or treatment team if you have any side effect that bothers you or that does not go away.

Please visit TEPEZZA.com for more information.
You are encouraged to report negative side effects of prescription drugs to the FDA.
Visit www.fda.gov/safety/medwatch, or call the FDA at 1-800-FDA-1088.

USE

TEPEZZA is a prescription medicine used to treat Thyroid Eye Disease.