Find a TED Eye Specialist
Not all doctors are used to treating TED. Find a TED Eye Specialist in your area to make sure you are seeing a doctor who has experience treating it.
Questions about TED or TEPEZZA (teprotumumab-trbw)? Join us for an interactive, online event with a TED Eye Specialist and TEPEZZA Patient!
Questions about TED or TEPEZZA?
Call a Nurse Advocate at: 1-833-483-7399
Questions about TED or TEPEZZA?
Call a Nurse Advocate at: 1-833-483-7399
Thyroid Eye Disease (TED) is a progressive disease, which means it may get worse over time.
TED has 2 phases, and can be treated in both. The first is called the “acute” phase, which you may also hear your doctor call the “active” phase of TED. The second is called the “chronic” phase, which your doctor may call the “inactive” phase. This does not mean TED has gone away. Since TED is an ongoing autoimmune disease, you may still have symptoms in the chronic phase. When people with TED start to show symptoms again at least 6 months after TED has been in the chronic phase, it is considered a “flare up.” Flare-ups are a normal part of how many autoimmune diseases work.
A TED Eye Specialist can tell you which phase of TED you’re in. Use the diagrams below to learn what happens in each phase of TED.
Not all doctors are used to treating TED. Find a TED Eye Specialist in your area to make sure you are seeing a doctor who has experience treating it.
Discover what happens to the eye in the acute phase
Learn about further eye damage that can occur in the chronic phase
Remember, TED is an ongoing disease. Just because some symptoms slow down, does not mean they will go away. It’s even possible for symptoms to return, or “flare up.” If you have symptoms that come back at least 6 months after your TED has been in the chronic phase, it is considered a “flare up.” Approximately 15% of TED patients may have flares. Sometimes these flares are years after early symptoms stopped or lessened.
— Raymond Douglas, MD, PhD, oculoplastic surgeon, and clinical study investigator of TEPEZZA
Find a TED Eye Specialist near you.
The sooner you get treatment, the better your chances of avoiding damage to your eyes. See the difference TEPEZZA can make.
Infusion reactions can happen during or within 24 hours after your infusion of TEPEZZA. If you have a reaction while receiving TEPEZZA, your doctor or nurse will slow or stop your infusion and treat your reaction. If you have a severe infusion reaction, your doctor may stop your treatment completely.
If you have inflammatory bowel disease (IBD), such as Crohn's disease or ulcerative colitis, TEPEZZA may make your IBD symptoms worse. Symptoms of worsening IBD may include: an increased number of loose stools with stomach pain or cramps, and blood in your stools. After each TEPEZZA infusion, tell your doctor right away if you have worsening IBD symptoms.
TEPEZZA may cause an increase in your blood sugar. Before starting treatment with TEPEZZA, tell your doctor if you are currently being treated for diabetes, know your blood sugar is high, or have been diagnosed with diabetes. It is important for you to take your treatments and follow an appropriate diet for glucose control as prescribed by your doctor.
The most common side effects of TEPEZZA include muscle cramps or spasms, nausea, hair loss, diarrhea, feeling tired, high blood sugar, hearing problems, taste changes, headache, dry skin and changes in menstruation.
This is not a complete list of all possible side effects. Tell your doctor or treatment team about any side effect you may have.
TEPEZZA is a prescription medicine used to treat Thyroid Eye Disease.
Infusion reactions can happen during or within 24 hours after your infusion of TEPEZZA. If you have a reaction while receiving TEPEZZA, your doctor or nurse will slow or stop your infusion and treat your reaction. If you have a severe infusion reaction, your doctor may stop your treatment completely.
If you have inflammatory bowel disease (IBD), such as Crohn's disease or ulcerative colitis, TEPEZZA may make your IBD symptoms worse. Symptoms of worsening IBD may include: an increased number of loose stools with stomach pain or cramps, and blood in your stools. After each TEPEZZA infusion, tell your doctor right away if you have worsening IBD symptoms.
TEPEZZA may cause an increase in your blood sugar. Before starting treatment with TEPEZZA, tell your doctor if you are currently being treated for diabetes, know your blood sugar is high, or have been diagnosed with diabetes. It is important for you to take your treatments and follow an appropriate diet for glucose control as prescribed by your doctor.
The most common side effects of TEPEZZA include muscle cramps or spasms, nausea, hair loss, diarrhea, feeling tired, high blood sugar, hearing problems, taste changes, headache, dry skin and changes in menstruation.
This is not a complete list of all possible side effects. Tell your doctor or treatment team about any side effect you may have.
TEPEZZA is a prescription medicine used to treat Thyroid Eye Disease.